The aim of the Ethics and Governance Framework (EGF) sets standards for the UK Biobank project and makes sure that all necessary safeguards are in place to ensure that the data and samples are only used for scientifically and ethically approved research. The first public draft of the Ethics and Governance Framework (EGF) was developed with the advice of an Interim Advisory Group which met three times between February and July 2003. The group included experts in research ethics, philosophy, law, science and social science, and consumer representation, and was chaired by Dr William Lowrance, a consultant in health policy and ethics. A second draft EGF was agreed by the Board and the EGC in 2006. The EGF will evolve through the course of the UK Biobank project, adapting to scientific, ethical, legal and other developments.
- Ethics and Governance Framework[PDF 72k]