Last updated Jan 24, 2019
UK Biobank is an important international resource for health research. A registered charity, it is funded by the Medical Research Council and Wellcome Trust and supported by the NHS.
More information is available by emailing UK Biobank , by filling in the web feedback form or by calling the UK Biobank Participant Resource Centre on 0800 0 276 276 (8am-6pm Monday-Friday and 8am – 4pm Saturday).
UK Biobank is following your health through linkage to medical records. Upon joining UK Biobank as a participant you will have signed a consent form to allow UK Biobank to access your medical and other health-related records for research purposes. Coded GP data can provide lots of information on illnesses like back pain, depression, diabetes and migraine, which are not usually treated in hospital, but cause considerable disability and pain. UK Biobank has routinely linked to national death and cancer registries and to national hospital data electronic record systems for all its participants since 2010.
UK Biobank is already providing approved scientists with a wide range of anonymised data and samples to study the interaction of genes, lifestyle and environment in causing a wide range of diseases (such as cancer, heart disease, dementia, diabetes, depression and arthritis). You can view the results on our published papers web page.
In undertaking this linkage and data extraction process, it is important to note that:
- UK Biobank will only release anonymised data to approved researchers for the purpose of health-related research for the benefit of the public;
- No identifiable data for any health care professional are being requested;
- Information that identifies participants, such as name and date of birth, will only be used by UK Biobank for the purposes of linking primary care data to the other data that it holds.