Guidance note to invite proposals for web-based questionnaires and remote monitoring devices
UK Biobank is conducting a range of additional phenotyping assessments in large subsets of the participants. We welcome proposals from researchers as to what other information could be collected on the cohort via web-based questionnaires or remote monitoring devices in the future.
Web-based questionnaires: We are planning to send a series of web-based questionnaires to those participants for whom we have an email address (currently ~340,000) to collect new or more detailed information on exposures and to collect information on health outcomes that are not available easily via electronic health records.
We started with a series of dietary 24-hour recall questionnaires sent during 2011-2012, with a response rate of about 33% each time (over 210,000 participants responded at least once). Other questionnaires that we have developed cover cognitive function, occupational history and mental health outcomes.
We plan to send web-based questionnaires approximately once – twice each year (some of which may be new; some may be repeated at regular intervals).
Below is an outline of the topic content and schedule of web-based questionnaires:
|Date administered||Content of questionnaire||Collaborators|
|2011 – 2012||24 hour dietary recall questionnaire, (administered on 4 occasions)||Prof Valerie Beral (Oxford University)|
|2014 – 2015||Mood and cognitive function||UK Biobank cognitive neuroscience expert working group (Prof John Gallacher; Oxford University)|
|2015||Occupational history||Dr Lesley Rushton, Dr Paul Cullinan, and Dr Sara Mattias (Imperial College London)|
|2016 – 2017||Mental Health||UK Biobank mental health outcomes expert working group (Prof Matthew Hotopf; Kings College London), Dr Miles Parkes; Addenbrookes Hospital Cambridge, Prof Peter Whorwell; Manchester University|
|2017||Digestive Health||Prof Robin Spiller, Nottingham University|
|2017||24 hour dietary recall questionnaire, (administered on 4 occasions)||Prof Valerie Beral, Oxford University|
Remote monitoring devices: We have collected 7-day physical activity data on 100,000 participants and are currently collecting data on heart rhythm using a remote heart monitoring device (provided to participants who attend the imaging clinic).
Please do get in touch with us by emailing email@example.com if you would like to submit a proposal to re-contact participants in order to collect new information via a web-based questionnaire or a remote monitoring device.
Such proposals should include the following:
- A strong scientific rationale for use in the UK Biobank population (e.g., giving consideration to the age range of the cohort, likely prevalence of the expected exposure/outcome you wish to measure; ability for prospective evaluation; examples of the range of research questions this measure will uniquely help to address, etc.)
- Published evidence of the validity and reliability of the measure in population-based research settings.
- A detailed specification of the content of the questionnaire/device and what is expected of the participant (e.g., length of questionnaire, special requirements or exclusions).
The proposal should be submitted to us directly (i.e. they should not be included as part as a research application to use the resource). The decision to implement these proposals is based on scientific merit and will be taken by UK Biobank, with advice from the Steering Committee and others, where appropriate.