Guidance note to invite proposals for web-based questionnaires and remote monitoring devices
UK Biobank is conducting a range of additional phenotyping assessments in large subsets of the participants. We welcome proposals from researchers as to what other information could be collected on the cohort via web-based questionnaires or remote monitoring devices in the future.
Web-based questionnaires: We areplanning to send a series of web-based questionnaires to those participants for whom we have an email address (currently ~340,000) to collect new or more detailed information on exposures and to collect information on health outcomes that are not available easily via electronic health records.
We started with a series of dietary 24-hour recall questionnaires sent during 2011-2012, with a response rate of about 33% each time (over 210,000 participants responded at least once). Other questionnaires that we have developed (or are under development) cover cognitive function, occupational history and mental health outcomes.
We plan to send web-based questionnaires approximately twice each year (some of which may be new; some may be repeated at regular intervals) and their release will be carefully managed to avoid overburdening participants.
Below is an outline of the topic content and schedule of web-based questionnaires:
|Date||Content of questionnaire||Collaborators|
24-hour dietary recall questionnaire (administered on 4 occasions)
|Prof Valerie Beral (University of Oxford)|
|Q3-Q4 2015||Occupational History||Dr Lesley Rushton, Dr Paul Cullinan,
and Dr Sara Mattias (Imperial College
|Q2 2016-Q1 2017||Mental Health outcomes||UK Biobank mental health outcomes expert working group (lead contact: Prof Matthew Hotopf; King’s College, London)|
|Q4 2017||Digestive Health Questionnaire||
Dr Miles Parkes, Consultant Gastroenterologist, Cambridge
Prof Peter Whorwell, Professor of Medicine & Gastroenterology, University of Manchester
Prof Robin Spiller, Professor of Gastroenterology, University of Nottingham
Dr Nicholas Kennedy, Consultant Gastroenterologist and Honorary Clinical Senior Lecturer, Exeter
Professor Elizabeth Soilleux, Associate Professor of Pathology, University of Oxford
Remote monitoring devices: We are currently collecting 7-day physical activity data on 100,000 participants and have plans to collect data on heart rhythm using a remote heart monitoring device (provided to participants who attend the imaging clinic).
Please do get in touch with us by emailing email@example.com you would like to submit a proposal to re-contact participants in order to collect new information via administration of a web-based questionnaire or a remote monitoring device.
Such proposals should include the following:
- A strong scientific rationale for use in the UK Biobank population (e.g., giving consideration to the age range of the cohort, likely prevalence of the expected exposure/outcome you wish to measure; ability for prospective evaluation; examples of the range of research questions this measure will uniquely help to address, etc.)
- Published evidence of the validity and reliability of the measure in population-based research settings.
- A detailed specification of the content of the questionnaire/device and what is expected of the participant (e.g., length of questionnaire, special requirements or exclusions).
The proposal should be submitted to us directly (i.e. they should not be included as part as a research application to use the resource). The decision to implement these proposals is based on scientific merit and will be taken by UK Biobank, with advice from the Steering Committee and others, where appropriate. Please note that these proposals will: (i) require funding, and (ii) need to be scheduled in with our other planned activities (outlined above).