Last updated on August 1st, 2014
You are free to withdraw at any time from the study without giving us a reason. You are welcome to discuss concerns with us at any time, and the various options you have for withdrawal.
Participants can withdraw at one of three levels:
No further contact
This means that UK Biobank would no longer contact the participant directly but would have permission to retain and use information and samples provided previously and to obtain and use further information from health records. This level of withdrawal leaves the resource in tact and will allow researchers to study disease with the goal of improving the health of future generations. If you wish ‘No further contact’, please do speak to the UK Biobank Participant Resource Centre on 0800 0 276 276 (free from most land lines) since there are a number of options available (for instance, you could request that UK Biobank does not contact you to ask for further help, but that you still receive the annual newsletter).
No further access
This means that UK Biobank would no longer contact the participant or obtain further information from health records in the future, but still has permission to use the information and samples provided previously. You need to contact UK Biobank by phone, email, letter or via the website feedback form and request a Withdrawal Form.
No further use
In addition to no longer contacting the participant or obtaining further information, any information and samples collected previously would no longer be available to researchers. UK Biobank would destroy samples (although it may not be possible to trace all distributed sample remnants) and would only hold information for archival audit purposes. Such a withdrawal would prevent information about the participant from contributing to further research, but it would not be possible to remove data from research that had already taken place. You need to contact UK Biobank by phone, email, letter or via the website feedback form and request a Withdrawal Form.
You can obtain a withdrawal form by contacting the UK Biobank Participant Resource Centre on 0800 0 276 276 (8am-7pm Monday-Saturday) or by writing to: UK Biobank, 1-2 Spectrum Way, Adswood, Stockport, SK3 0SA, or by contacting UK Biobank via its website feedback form.