Thank you for participating in UK Biobank. Please stay in touch with UK Biobank, so that we can tell you about the results as they emerge. We would also like to ask for your further help to make the resource even better (though we will keep these requests to a minimum). You can choose whether or not you wish to help, each time you hear from us.
Who is using the resource?
UK Biobank is being used by a huge range of scientists from around the world studying lots of different health problems (including those in the US, Australia, France, Spain, Russia & Japan).
The resource is open to any bona fide researcher undertaking health related research, wherever they might be. Currently, most researchers are UK-based and working in academia. UK Biobank hopes more researchers from overseas and working in industry will find the resource of value, and use it to improve the health of future generations.
You can find out about the research currently under way, and where it is being done, by clicking on our interactive map in the Approved Research section of this web site. The Publications section provides a summary of findings that have been written up in specialist research journals, or been presented to conferences.
Improving the UK Biobank resource
From time to time UK Biobank would like to find out more about participants, which will strengthen the resource for health research. For example, participants for whom we have an email address are currently being sent an online questionnaire to obtain more detailed information about their diets.
Please follow this link to find out more about the UK Biobank diet questionnaire.
Follow-up of health
The first phase of UK Biobank is now complete. More than 500,000 people have joined the project and provided detailed information on their health and lifestyle, creating the foundations of a life-long resource to help scientists understand why some people get illnesses like heart disease, stroke, cancer, dementia and arthritis and others do not. UK Biobank is now embarking on long-term follow-up of health.
It is making considerable progress in linking health and health-related data to UK Biobank participant records. Links to information held in general practice (GPs) would allow participants’ health to be followed over many years – though information that might identify participants would not be provided to scientists. Information about new cases of cancer is now regularly being received by UK Biobank. Details about information on participants who die are also updated regularly. UK Biobank is also linking to information about stays in hospital.
A timetable for when these data will be available for approved researchers to use (without identifying participants) can be found in our Data Showcase. (Q2/2013 refers to the second quarter of 2013, April-June, and so on.)
Feedback is important to us. Whether it is about your call to the Participant Resource Centre, ideas or suggestions about this website or the Newsletter, or any other aspects of the study, please do let us know. You can use the website feedback form – and don’t forget to tell us if you require a reply.
We hope you will not wish to withdraw from UK Biobank, because the project is of most value if participants stay with the project. However, participants can withdraw at any time without providing a reason. You can find out more about the withdrawal options here.