Find answers to questions you may have about completing the UK Biobank Brain Health Study eligibility survey.
Survey system
Why am I being asked to complete the identity check module?
The weblink to the Brain Health survey we have sent to you by email is specific to you; this is so that we can add the data from the survey to other data that you have provided previously.
This means that it is very important that your survey is only completed by you. Sometimes participants share email addresses or devices with other members of their household, and this has led to surveys being completed by someone other than the intended recipient.
We use your date of birth to double-check that the survey has been completed by the correct person. We need to ask for your full date of birth because a partial date of birth may not distinguish you from someone you share an email address or device with (if you both have the same month and year of birth).
What happens if I realise that I have completed someone else's survey?
If you realise that you have completed a survey intended for another UK Biobank participant (for example, someone who shares an email address with you), please let our Participant Resource Centre know by calling 0800 0 276 276 (Monday to Friday, 9am-5pm).
I have completed the survey so why have I received an email reminding to do it?
For the survey to be marked as ‘finished’ by our systems, every section of the survey must be marked as complete. It is possible that this has not been done, so we advise that you return to the survey and check this. Alternatively, you might have accidentally completed the survey belonging to another UK Biobank participant with whom you share an email address (for example, your spouse or partner). Please double-check that you have used the correct web link that is unique to you, which was included in the email which we addressed specifically to you.
I would like to receive a copy of the whole survey to remind me of the questions that I have answered. Is this possible?
We are not able to provide participants with a copy of the survey. However, this will be available on the Showcase section of our website once the survey data have been released to researchers.
Survey content
Why have you sent me this survey?
UK Biobank is running a new study about brain health. The aim of the study is to help researchers develop better ways to diagnose and treat conditions like dementia and Parkinson’s disease. We have sent you this survey to see if you are eligible to take part in the study.
Will it take me long to complete?
The survey should take you about five minutes to complete.
If I am eligible for the study, do I have to take part?
No, you do not have to take part. If you are eligible for the Brain Health Study, it is completely up to you whether you do take part.
I don't know whether I have any more problems with my memory or thinking than other people my age. How should I respond?
Please select the ‘Do not know’ option.
What do you mean by 'problems with controlling my movements'?
We mean bodily movements that you cannot control, such as a tremor (shaking or trembling) or a muscle spasm.
I don't think that a doctor or medical professional has ever given me a diagnosis for any of the listed condition. How should I respond?
Please select the ‘Do not know’ option.
What will happen with the data I provide?
We care about your personal information and your privacy. Whether you are eligible to join the Brain Health Study or not, we will store these survey response data securely and use them in the same way as the other personal data we hold about you. This is explained in our Participant Privacy Notice. You can request a paper copy of our Privacy Notice by contacting the UK Biobank Participant Resource Centre on 0800 0 276 276.