Read the 2022 newsletter
Catch up on the milestones and achievements you have helped UK Biobank to reach over the last year in the 2022 newsletter. Find out about future projects and ways to stay involved by taking part in new enhancements to the study. We send the annual newsletter to all participants and you will receive a copy by email or by post if we do not have a valid email address for you. To keep our costs down please do let us know an email address if you have one.
We hope you enjoy reading the stories in this year’s newsletter.
Rory Cellan-Jones on the importance of linking GP data to UK Biobank
"Imagine a huge database containing the health records of half a million people who had agreed to undergo all sorts of tests and be tracked over time. That would be an invaluable resource for researchers trying to discover new ways of treating life-threatening diseases or planning how to confront a pandemic. Sounds great doesn’t it? Well it’s not a fantasy - it exists and it’s called UK Biobank.
When I wrote of the challenges in getting this kind of medical data sharing project off the ground I knew vaguely about the Biobank but had no idea of its scale. What I also didn’t know was that this was another example of the endless struggles to get hold of primary care data for use in research - and one all the more frustrating because those half a million participants have all given explicit consent for that to happen."
UK Biobank on the Genetics Podcast
Dr Mark Effingham, Deputy CEO at UK Biobank, joined Professor Marylyn Ritchie, University of Pennsylvania, and Dr Kari Stefansson, Founder and CEO of deCODE Genetics, on an episode of The Genetics Podcast to discuss UK Biobank's ground-breaking Whole Genome Sequencing (WGS) project and the potential it has to change to the future of genomics research.
Participant event about the value of GP data
There has been a lot of confusion in the media about NHS Digital’s plan – called the General Practice Data for Planning and Research (GPDPR) – to add GP patient records to all of the other medical data that are already available centrally in the NHS for approved research and to improve health care.
Thanks to your participation in UK Biobank, and that of 500,000 other people from around the UK, an enormous amount is being learnt about how best to prevent and treat many different kinds of disabling and life-threatening diseases.
This research depends on our ability to access information about health outcomes that occur among UK Biobank participants through linkage to NHS medical record systems in accordance with the consent that you gave us when you first agreed to participate in UK Biobank.
We hosted a virtual participant event on the 18th of August 2021 from 2pm to 3pm. Professor Helen Stokes-Lampard, previous Chair of the Royal College of GPs, joined other esteemed experts to help explain what is happening with GPDPR and were available to answer questions from the audience. Click on the button below to watch on-demand content from this event.
Serology participant event
The UK Biobank Coronavirus Serology Study: Participant event took a deep dive into our 6 month Serology project. On demand content from this interactive evening and further information are available by clicking on the button below.
UK Biobank's Principal Investigator wins MRC's Millennium Medal 2020
Chief Executive and Principal Investigator of UK Biobank, Professor Sir Rory Collins, has won the Medical Research Council's Millennium Medal 2020. Watch his full interview with Sarah Trenfield, Strategic Stakeholder Engagement Manager at the MRC, in which Rory shares highlights from his career. You can also click on the button below to read the full blog post.
Interview with Scientia
UK Biobank's Principal Investigator, Professor Sir Rory Collins, was asked to partake in an exclusive interview with Scientia magazine for their health and medicine issue. Click on the button below to read about some of UK Biobank's achievements, as well as the ambitious and unique potential of this exciting project.
As a UK Biobank participant, you will receive an annual newsletter detailing new research initiatives beginning and results from health research findings through the use of the data. It will enable you to get involved where you can. We send this to you by email (if we have your email address) or by post if not. If you have not seen the latest issue, you can download a copy below. Don't forget, you can always get in touch with us with your feedback, suggestions and recommended reads.
We host in-person events every year for you to find out more about the work of UK Biobank. Events offer you the chance to meet some of the scientists using our data and to ask questions.
With 500,000 participants we have to do this via invitation only, but we run some of these events online. You can view previous event videos on our YouTube channel.